Tech Tips for Non-Tech People!
Original Air Date: Nov 7, 2016
Patients Like Me Website
We all remember the Ice Bucket Challenge which drew attention to ALS and became an amazing online phenomenon in the history of the Internet.
Another lesser known ALS inspired Internet resource is a website called PatientsLikeMe.com
Ben and Jamie Heywood launched it in 2006 because of their brothers ALS diagnosis and it has become an amazing treatment, medical symptom and outcome-sharing community on the Internet.
When anyone you know is diagnosed with a serious illness, it is really easy to feel like they're alone in their battle, but they are not alone.
By connecting with others that are going through the same medical situation and comparing your treatments, symptoms and general experiences, the site becomes a very valuable support system.
It doesn’t matter whether you want to get or provide support with people that are experiencing the same situation, PatientsLikeMe is a really helpful tool for making the connections.
You can even use the site to track your health timelines and provide your data to research if you are so inclined.
PatientsLikeMe.com has over 400,000 members with over 2000 health conditions, so it’s a great way to find lots of other people that can relate to your situation.